BOARD OF DIRECTORS
ELIZABETH OPPO
Edward Conte
Director
Development
Tony Weber
Dr. Richard Jove
Treasurer
Science Advisor
Andrew Oppo
Director of Media
Daniella Calcagni
Special Event Chair/Fun Run
SPONSORS & PARTNERS
Sponsors
PARTNERS
The SCCOHT-SMARCA4 Registry provides the research community access to information and resources to support efforts to better understand the very rare disease that is SCCOHT and the consequences of bearing a SMARCA4 variant.